Aiden came Home - December 2, 2009

Because of complications, Aiden is now under comfort care and because he is stable and we have such a great doctor (THANKS DR. PAYNE!!!), we were allowed to bring Aiden home. It was such a surprise to Shane & I, Dr. Payne had approached Shane earlier on Wednesday and asked if she could have it arranged if we would want to take Aiden home. His response "Of course" but they did not approach me until everything had been arranged and once they told me I was up packing the bags and getting ready. This has been my dream all along to have my son at home with his family in his room. I can never say enough THANKS to St. Francis NICU doctors, nurses, and staff, they have become such a big part of our family and though I am so glad to have Aiden here I do miss them all. They were and are such a comfort to us.

The first night home with hospice was a little difficult, all patients go through a "transition period" after that much time in a hospital and for Aiden all his life. Our home is much calmer, quieter, and not as bright as the hospital so everything is a major adjustment but since then he is doing great. Shane & I have the greatest supportive friends whom we did not have to ask but volunteered time from their family, friends, and work to stay with us. We take shifts, 2 at night and 2 during the day and according to Shane the Superman he does not have to sleep. Thank you to all our friends and family for all the love and support, visits, notes, food, and most of all your loving friendship and faith in God.

ALL YOUR PRAYERS HAVE WORKED - AIDEN IS HOME!

That my heart might sing to You and not be silent. O LORD my God, I will give You thanks forever.
Psalms 30:12